Baku, February 28, AZERTAC
EURORDIS leads the global community in organizing Rare Disease Day, which takes place on the last day of February each year to raise awareness of the impact that rare diseases have on an estimated over 300 million people around the world.
This year`s slogan is `Show Your Rare, Show You Care` and the theme is `Bridging health and social care`. Rare Disease Day 2019 is an opportunity to be part of a global call on policy makers, healthcare professionals, and care services to better coordinate all aspects of care for people living with a rare disease.
Organised by EURORDIS, this event brings together 100 participants from the international NGO community, UN agencies, national governments, academic and research institutions, and the private sector, interested in collaborating to work towards the advancement of rare diseases as a global public health priority.
80% of rare diseases are of genetic origin, and are often chronic and life-threatening.
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